The site, founded by Christine Miserandino, offers tips, product reviews,
articles and essays which have become invaluable to people with any chronic
pain condition, or illness.
“I am so proud to be online for 5 years. I have seen my site grow more
then I ever imagined. I always knew we could use technology as a tool for
those of us with health issues to help each other and build a community.”
says founder Christine Miserandino.
In recent years, ButYouDontLookSick.com has transformed from a personal
web site to an international community and support network for the
chronically ill as well as their loved ones. The site now features articles
from several talented authors as well as a forum, chat room, “Get Well Gift
Store”, and daily content delivered via newsfeed or e-mail newsletter.
ButYouDontLookSick.com is also the home of “The Spoon Theory”, a young
woman’s explanation of what it feels like to live with Lupus. In her story,
author Christine Miserandino wanted to explain how someone with a chronic
illness makes choices everyday that a healthy person takes for granted. “I
wanted something for her to actually hold. If I was in control of taking
away the spoons, then she would know what it felt like to have something
else, in this case Lupus, being in control.” says Christine. “The Spoon
Theory” has been featured in many health newsletters, magazines and support
groups. The story has touched so many of the ButYouDontLookSick.com readers
that they affectionately refer to each other as “Spoonies”.
The message boards and chat room at ButYouDontLookSick.com have nearly
5000 active members. “It is very easy to feel isolated and uninformed when
you are sick or stuck at home. I built this site to help people living with
similar symptoms or experiences make connections.” says Christine
Miserandino. With this much growth in the first 5 years we are excited to
see what the future holds.
*Christine is available for interviews, quotes, or guest blogging.
_______________
ButYouDontLookSick.com E- Magazine, online since July 2003, is about
living life to the fullest with any invisible disease. The site is a
collection of articles, stories, book and product reviews, with health
resources and an active message board for the disabled, or those living with
chronic pain or illness. Online gift store, chat room, and FREE daily email
newsletter are new popular additions to our site.
Christine Miserandino is a writer, speaker, patient advocate, wife and
mother living in Massapequa Park, NY. Her writing which has won various
awards has been featured in numerous newspapers, magazines, medical
newsletters and television media.
Christine is the founder of www.butyoudontlooksick.com , a website that provides resources and useful
tips for living life to the fullest with a chronic illness. Through her
website, Christine has created an online community that brings people
together from all over the world to share their experiences, seek support,
offer tips and advice, and create friendships. She has been living with
lupus for over 15 years, and has been volunteering for the Lupus Alliance,
Long Island/ Queens Affiliate for 12 years. Christine has actively
volunteered her time for various fundraising events, speaking engagements,
and special programs offered by the Lupus Alliance. Recently, she has been
appointed to the executive board of directors, of both the Lupus Alliance of
America, and the Lupus Alliance of America – Long Island/ Queens Affiliate.
For information: visit
www.ButYouDontLookSick.com or Contact: Christine@butyoudontlooksick.com
Phone: 516 343 9322
